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Rank: Advanced Member
Groups: Registered
Joined: 5/19/2010 Posts: 384
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Hello Everyone,
Advice please. I was due to have a tint with foils today but cancelled and just had a trim instead. I am worried about hair loss. Just taken fourth dose of MTX 20mg weekly. Has anyone been affected with hair loss taking MTX. Anne x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Anne,
I think there are maybe one or two on here who have had some hair loss while on mtx but when balanced against the number of people who are on it, it is only a very small percentage who are affected. My hair did go a bit thinner initially but seems to have settled down now ,I've been on it about 5 years. I regularly dye my hair with a permanent colour and it hasn't made any difference being on mtx. ( I always do a skin test.) Hope that helps. Love, Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Hi Ann
I think quite a few people experience initial hair loss when on mtx. I certainly did but after a month or two it settled down. I must admit, my hair is not as thick as it once was but that could also be due in part to the fact that I'm getting older.
Love Jeanxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 714
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Ann
I have been on Methotrexate for over a year now and have had no problems with hair loss. If any the opposite has happened, my hair has gone thicker and I have a wave in it now where as before it was always dead straight. It is costing me a fortune at the hairdressers having to have it cut every 5-6 weeks to keep up with the growth. I must admit I do not dye my hair and will never do so. My Mother-in-Law had a very bad reaction to the same hair dye she had used for years and it has completely put me off. The dermatologist said a skin test each time before you dye your hair is an absolute must as your body can build up an intolerance to it.
Jackie xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Hi tAnn
I'm up to 25mg of methotrexate and have been lucky that it hasn't affected my hair (fingers crossed). I use semi permanent colour and it's been fine. May be worth asking your hairdressed to do a patch test on your skin for you before you have it done.
Julie
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Rank: Advanced Member
Groups: Registered
Joined: 5/19/2010 Posts: 384
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Hello All
I have had my hair coloured for many years now, but was just worried about all my hair falling out, as much as I love shopping I didn't want to go shopping for a new hat. Anne
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009 Posts: 585
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Hi Annie I have foils and a colour on my hair every 6/8 weeks if I dident I would be as grey as a badgers bum (not that I have been that close to a badgers bum) my hair seems ok Mary L
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 838 Location: Nottinghamshire
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I've just started taking MTX and I am worried about hair loss. When I was talking to my nurse about it she told me that MTX can be used in the treatment of alopecia. Well, I found this hard to believe but said nothing. I've just been asking Mr Googe about it after reading this post and I've found this
Methotrexate
Joly25 reported 22 patients with longstanding, severe alopecia areata who responded well to methotrexate, with or without systemic corticosteroids. Although the results from that study are surprisingly good, a more standardized study involving more patients is needed because other dermatologists have not had such good efficacy with methotrexate.
So what can we believe?
She did say that it is only a very small percentage of people who do suffer from hair loss and if it did happen and I wasn't happy about it they would just change it to another medication.
Paula x x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Well, Paula, we live and learn don't we  As you say, what on earth are we supposed to believe! Love to you Jeanxxxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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I'm sure I'd seen on here that someone who had problems with hair loss had been advised to take extra folic acid on the non metho days aswell and that it had worked well. I must confess that it was one of my main worries when I started taking it. I'm not particularly blessed in the looks department and the thought of my hair dropping out as well was a real concern. However, I have been lucky and haven't had any ill effects. I don't think people realise how the thought of these things affects us.
Julie
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Julie - you look absolutely stunning in you photo.
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Rank: Advanced Member  Groups: Registered
Joined: 5/26/2010 Posts: 128 Location: Birmingham
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My hair started thinning last year before I started MTX. I've never been blessed with thick locks but I was beginning to look like my dear old dad. I started supplements, had my hair chopped and stopped using permanent dyes. It grew back with a vengeance.
Now I'm on MTX and I see my scalp shining brightly through my once-again thinning locks. I can't take the supplements because they have folic acid and the 'guidance' states patients on MTX shouldn't take supplements with folic acid. Yet my rheumatology nurse states she can increase my dose of folic acid if hair loss occurs.
Sometimes I wonder if the people who write these pamphlets actually know anything.
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Rank: Member
Groups: Registered
Joined: 6/8/2010 Posts: 17
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Hi, I have been on MTX since 2006. I have had thyroid problems in the past which did make my hair thinner. I think i must be one of those unfortunate ones as my hair has become much thinner (thyroid problems sorted so it cant be that!). The good side is that my hair is now nice and wavy instead of poker straight (the down side being that everyone wants straight hair these days!!) I dye mine blond cos then you cant tell its as thin!
Liz
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